Questions About Treatment

Questions About Treatment

 I don’t think I can inject my child! What do I do?

When you have a child, the last thing you expect to have to do is give them an injection! However, don’t panic because other KWANZ parents feel the same way too, but quickly become used to this procedure until it feels quite normal! Talk with your rheumatology team about how you feel. You should always be offered training at the start. There may be alternative options depending where you live. Take time to make the right decision for your family about how and where the injections will be done.

People have been telling me about all sorts of ‘cures’. Are there any alternative remedies that could help my child?

Currently there is no ‘cure’ for JIA. Medications, alongside physiotherapy and exercise, are the most important tools you have – these aim to send JIA into remission. Some children and young people will grow out of their JIA and some will spend long periods in remission without symptoms. What scientists do know, is that leaving JIA untreated or trying to treat it with untested substances, can cause damage to joints and eyes. It is important that you consult your team about anything else you wish to consider, as stopping medication could put your child’s health or eyesight at risk.

How will we manage the regular blood tests that are needed?

Several of the medications used to treat JIA require regular blood tests to keep an eye on how the medication is affecting the child. Many children cope surprisingly well with these blood tests. If blood tests are not going well however or you want to get prepared before your child starts these, we have produced an article on ‘Practical tips when having a painful or unpleasant procedure’, these ideas and suggestions may help. VR technology, play therapy, or a specialized nurse can help if your child is concerned about a procedure. The Paediatric Rheumatology team have resources to help with a child with anxiety or fear around injections and blood tests.